Prader-Willi Syndrome Association of Victoria

Empowering people living with Prader-Willi Syndrome through support, education, advocacy and awareness

PWSA Victoria Training

Tailored training and Education programs available to families, Disability Support Providers, Employers, Supervisors, Educators, Medical and Allied Health Professionals.

15 for 15 Challenge

Prader-Willi Syndrome does not stop so neither can we! Will you be joining the Challenge this May?

Join our community and enjoy ongoing help & support.

Members receive a quarterly newsletter with up to date information as well as notification of upcoming events and dates. Joining the Association gives you the opportunity to make contact with other parents and exchange information.

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Keep up-to-date with all the latest news

Dylan’s ability to ride Motorbikes encourages us all never to lose hope

Dylan aged 8 lives with Prader-Willi Syndrome and against all odds has learnt to ride a Motorbike. Dylan aged 8 loves nothing more than to be out on the…

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Update on PBS Growth Hormone Program for PWS

After years many years of advocating for Growth Hormone (GH) to become available under the Pharmaceutical Benefits Scheme (PBS) for adults with Prader-Willi Syndrome (PWS), in late December 2019,…

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The 15 for 15 Challenge

Prader-Willi Syndrome (PWS) is a rare and complex, genetic disorder that affects Chromosome 15. So, we named our fundraising effort, the 15 for 15 Challenge.  ‘Prader-Willi Syndrome does not…

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Help create the change we need!

The Prader-Willi Syndrome Association of Victoria (PWSA Victoria) believes that every person living with Prader-Willi Syndrome deserves every opportunity to live a full and inclusive life. By supporting the PWSA Vic you are helping us:

  • provide vital on the ground support and services to families living with PWS,
  • provide education and training programs to families, Disability Support Providers, Employers, Supervisors, Educators, Medical and Allied Health Professionals,
  • continue in our advocacy efforts to create positive changes that will continue to impact the lives of all people living with Prader-Willi Syndrome now and in the future.
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