About Us

The Prader-Willi Syndrome Association of Victoria Inc. (PWSA Victoria) is a volunteer led ACNC registered Australian Charity, with many volunteers having lived experience.

Our History

Since 1979, the PWSA Victoria has been providing vital on the ground support to families, professionals and community organisations in the southern states of Australia.  

Today, we know more about Prader-Willi Syndrome (PWS) than ever before. The purpose of the PWSA Victoria is to provide vital services to those living and supporting people, with PWS in the areas of education, support, advocacy and awareness. 

It is our role to work closely with organisations around the world, whose vision and purpose align with ours, to ensure the entire PWS community is well supported, while researchers around the world work hard to find a cure and viable treatments.

It is our vision to ensure that every member living with PWS receives optimal care and assistance from the beginning of life. We provide up to date and relevant information to help guide families through all stages of the PWS journey and help navigate the medical and education system and the National Disability Insurance Scheme (NDIS). 

VISION: A world where people with Prader-Willi Syndrome lead a full and inclusive life

We also assist the wider PWS community – educators, professional service providers, medical and allied health professionals, disability advocacy groups, employers, the research community and the broader community in understanding PWS and provide information on how best to care for someone with PWS.

We aim to continue to break down barriers and create a world where everyone with PWS has access to the right tools, to enable them to live a full and inclusive life.

MISSON: Empowering those living with PWS through support, education, advocacy and awareness.

Australian Business Number (ABN)

Prader-Willi Syndrome Association of Victoria Inc. ABN: 93 836 682 679

Australian Charities and Not for Profit (ACNC)

The Prader-Willi Syndrome Association of Victoria Inc. is registered with the Australian Charities and Not-for-profits Commission (ACNC). Details can be found on the Australian Charities and Not-for-profits Commission website. 

Deductible gift recipient status 

DGR Reference Number: 900462951. Prader-Willi Syndrome Association of Victoria Inc. is endorsed as a Deductible Gift Recipient (DGR) from 01 Jul 2000. 

Donors wishing to claim a deduction for gifts/donations $2 and over should make reference to the Prader-Willi Syndrome Association of Victoria Inc. and our DGR number (900462951) in their payment records.

Further information relating to Gifts and Fundraising can be accessed on the Australian Government Taxation website.